LIVING AND THRIVING WITH PFEIFFER SYNDROME
In this episode you will hear what it is like growing up with PFEIFFER SYNDROME. My goal is to break down the myths that often come with this diagnosis. You will see from Brooke who is also a Podcast host of Flourishing with a Facial Difference , how she handles some of the obstacles in her life and the many lessons she learned from having Pfeiffer Syndrome.
VLOG #4 surgery discharge day
Cali went in for a skull surgery and now we get to bring her home! Check out what a discharge day looks like, from hospital entrance, care instructions, paperwork, and home!
VLOG #3 FAMILY OCEAN VACATION
We had quite the adventure for our first ever family vacation, more like the shortest family vacation. Things did not go the way we planned, from a power outage to wildfires but we made the most of our family time.SHOW MORE
VLOG #2 CALI’S LAKE ADVENTURES
Watch as Cali floats in the lake for the first time and goes on her first boat ride on Lake Tapps.
VLOG #1- CALI’S FIRST OUTPATIENT DR. APPOINTMENT
We are finally home and this was a snapshot of our first trip out of the house without nurses!
BREASTMILK STORAGE TIPS
Storing your breast milk is so vital to extend your supply and keep it fresh for your child. I will share my tips on how I was transporting my milk daily to the NICU, my home freezer brick storage tips, and thawing techniques, and go-to products!
MY EXCLUSIVELY PUMPING JOURNEY
I share my pumping journey, tips and a review of my pumps the Medela and Willow.
MACHINE RUNDOWN
I always get so many questions about Caliyah’s machine, so here is a detailed rundown on her three machines that go every where we go.
EPISODE:CALI’S NICU, FLOOR, AND HOME ROOM TOUR
Over a five month span Caliyah has had five rooms from living in the NICU, floor, until she made her way home. I will share you the behind the scenes look of all her rooms!
episode: caliyah’s homecoming
After 5 months of life in the hospital we finally made our way home. IT WAS THE BEST DAY OF 2020 THUS FAR.
episode: 24 hour hospital room in
during our stay at seattle children’s we had to get trained to be a caregiver for our daughter. Before we could get discharged we had to stay in the hospital for 24 hours and handle all of her cares. tHE NURSES WERE THERE FOR GUIDANCE BUT WE HAD TO INITIATE AND DELIVER ALL MEDICINE, FOOD, ETC.
